Tantangan Dan Harapan Pasien Gagal Ginjal Kronis Dalam Menjalani Terapi Hemodialisis Jangka Panjang

Mazaya Bilqiis Deswynand Sutedjo; Burhannudin Ichsan; Asri Alfajri; Siti Soekiswati

doi:10.31004/koloni.v5i3.1201

Authors

Mazaya Bilqiis Deswynand Sutedjo Universitas Muhammadiyah Surakarta
Burhannudin Ichsan Universitas Muhammadiyah Surakarta
Asri Alfajri Universitas Muhammadiyah Surakarta
Siti Soekiswati Universitas Muhammadiyah Surakarta

DOI:

https://doi.org/10.31004/koloni.v5i3.1201

Keywords:

Challenges, Chronic Kidney Disease, Hemodialysis, Hopes, Long-term hemodialysis, Qualitative

Abstract

Chronic Kidney Disease (CKD) is a progressive condition that requires long-term renal replacement therapy, one of which is hemodialysis, and it has a significant impact on patients’ physical, psychological, social, and economic conditions. The continuous and routine nature of hemodialysis often presents various challenges that affect patients’ quality of life. This study aimed to explore the challenges and hopes of patients with CKD undergoing long-term hemodialysis therapy. This study employed a qualitative design with a phenomenological approach. The study population consisted of patients with CKD undergoing hemodialysis at RSUD Dr. Moewardi Surakarta. The sample included 12 patients with CKD, five family members, and one healthcare professional, selected using purposive sampling. The research variables focused on the challenges and hopes experienced by patients during long-term hemodialysis therapy. Data were collected through in-depth interviews using semi-structured interview guidelines and were analyzed using content analysis. The results revealed that patients experienced multidimensional challenges, including physical challenges such as fatigue and post-dialysis symptoms; psychological challenges such as anxiety and treatment-related burnout; social challenges including stigma and limited social support; economic challenges related to job loss and financial burden; and logistical challenges such as travel distance and time constraints. On the other hand, patients expressed hopes of being able to return to daily activities, resume social roles, maintain family togetherness, and improve their quality of life. In conclusion, understanding the challenges and hopes of patients with CKD undergoing long-term hemodialysis is essential to support a holistic and sustainable care approach aimed at improving patients’ quality of life.

References

Agudelo-Botero, M., González-Robledo, M. C., Reyes-Morales, H., Giraldo-Rodríguez, L., Rojas-Russell, M., Mino-León, D., Ocampo-Morales, D. I., & Valdez-Ortiz, R. (2020). Health care trajectories and barriers to treatment for patients with end-stage renal disease without health insurance in Mexico: a mixed methods approach. International Journal for Equity in Health, 19(1), 120. https://doi.org/10.1186/s12939-020-01205-4

Al-Talib, M., Caskey, F. J., Inward, C., Ben-Shlomo, Y., & Hamilton, A. J. (2024). Psychosocial Health Among Young Adults With Kidney Failure: A Longitudinal Follow-up of the SPEAK (Surveying Patients Experiencing Young Adult Kidney Failure) Study. Kidney Medicine, 6(2), 100763. https://doi.org/10.1016/j.xkme.2023.100763

Alencar, S. B. V. De, Lima, M. De, Dias, L. A., Dias, V. A., Lessa, A. C., Bezerra, J. M., & Apolina, J. F. (2020). Depression and Quality of Life in Older Adults on Hemodialysis. Brazzlian Journal of Psychiatri, 42(2), 195–200. https://doi.org/10.1590/1516-4446-2018-0345

Andhika, R., Supriyadi, R., Bandiara, R., Sukesi, L., Sudarmadi, A. P., Wahyudi, K., & Sofiatin, Y. (2025). One-year Survival of End-Stage Kidney Disease Patients Undergoing Hemodialysis in Indonesia. February, 87–101.

Bello, A. K., Wainstein, M., & Johnson, D. W. (2022). Epidemiology of Haemodialysis Outcomes. 18(June). https://doi.org/10.1038/s41581-022-00542-7

Bhailis, Á. M. De, & Kalra, P. A. (2022). Hypertension and the Kidneys. British Journal of Hospital Medicine, 1–11. https://doi.org/10.12968/ hmed.2021.0440

Chuasuwan, A., Pooripussarakul, S., Thakkinstian, A., Ingsathit, A., & Pattanaprateep, O. (2020). Comparisons of quality of life between patients underwent peritoneal dialysis and hemodialysis : a systematic review and meta-analysis. 2, 1–11.

Dewi, A. A., & Wicaksono, D. A. (2024). The Effectiveness of Problem-Focused Coping and Emotion-Focused Coping on Work Stress: A Literature Review. Journal of Psychology and Health,, 1(1), 39–48.

Evans, M., Lewis, R. D., Morgan, A. R., Whyte, M. B., Hanif, W., Bain, S. C., Davies, S., Dashora, U., Yousef, Z., Patel, D. C., & Strain, W. D. (2022). A Narrative Review of Chronic Kidney Disease in Clinical Practice: Current Challenges and Future Perspectives. Advances in Therapy, 39(1), 33–43. https://doi.org/10.1007/s12325-021-01927-z

Fletcher, B. R., Damery, S., Aiyegbusi, O. L., Anderson, N., Calvert, M., Cockwell, P., Ferguson, J., Horton, M., Paap, M. C. S., Sidey-Gibbons, C., Slade, A., Turner, N., & Kyte, D. (2022). Symptom Burden and Health-Related Quality of Life in Chronic Kidney Disease: A Global Systematic Review and Meta-Analysis. PLoS Medicine, 19(4), 1–25. https://doi.org/10.1371/journal.pmed.1003954

Flythe, J. E., Chang, T. I., Gallagher, M. P., Lindley, E., Madero, M., Sarafidis, P. A., Unruh, M. L., Wang, A. Y.-M., Weiner, D. E., Cheung, M., Jadoul, M., Winkelmayer, W. C., & Polkinghorne, K. R. (2021). Blood pressure and volume management in dialysis: conclusions from a Kidney Disease: Improving Global Outcomes (KDIGO) Controversies Conference. HHS Public Access, 97(5), 861–876. https://doi.org/10.1016/j.kint.2020.01.046.Blood

Hadi, A., Asrori, & Rusman. (2021). Qualitative Research Phenomenological Study, Case Study, Grounded Theory. In Pena Persada Publisher (Vol. 3 no 5, Issue July).

Hakim, N. L. U., Hartoyo, M., Suharto, Supriyadi, & Budiyati. (2025). The Effect of Health Belief Model (HBM)-Based Education Using Leaflets on Treatment Adherence Among Chronic Kidney Failure Patients in Hemodialysis Rooms. Borobudur Nursing Review, 05(01), 20–34. https://doi.org/10.31603/bnur.13074

Husna, N., Bayhakki, & Erwin. (2024). The Relationship Between Social Support and Resilience in Patients Undergoing Hemodialysis at Arifin Achmad Regional General Hospital, Riau Province. INNOVATIVE: Journal Of Social Science Research Volume, 4, 9881–9889.

Hustrini, N. M. (2023). Chronic Kidney Disease Care In Indonesia. Acra Med Indonesia - Indonesia Journal Intern Med, 55(1), 1–3. https://doi.org/10.1038/ki.2015.230.3.

Kemenkes. (2017). InfoDATIN Ministry of Health Data and Information Center: Chronic Kidney Disease Situation. Kementrian Kesehatan Republik Indonesia.

Limono, A. B., Setyawan, Y., Tabita, H., & Silitonga, H. (2024). Characteristics and Quality of Life of Chronic Kidney Disease Patients Undergoing Hemodialysis in Surabaya. Jurnal Penyakit Dalam Udayana Udayana Journal of Internal Medicine, 8(2), 46–50. www.jpdunud.org

Liyanage, T., Toyama, T., Hockham, C., Ninomiya, T., Perkovic, V., Woodward, M., Fukagawa, M., Matsushita, K., Praditpornsilpa, K., Hooi, L. S., Iseki, K., Lin, M. Y., Stirnadel-Farrant, H. A., Jha, V., & Jun, M. (2022). Prevalence of Chronic Kidney Disease in Asia: A Systematic Review and Analysis. BMJ Global Health, 7(1), 1–9. https://doi.org/10.1136/bmjgh-2021-007525

Loutradis, C., Sarafidis, P. A., Ferro, C. J., & Zoccali, C. (2020). Volume Overload in Hemodialysis : Diagnosis , Cardiovascular Consequences , and Management REVIEW. Nephrology Dialysis Transplantation, November 2020, 2182–2193. https://doi.org/10.1093/ndt/gfaa182

Paoh, K. A. N. A., Syuhada, I., Rahadianti, D., & Fatrahady, L. B. (2025). The Relationship Between Adequate Hemodialysis and Stress, Anxiety, and Depression in Patients Undergoing Hemodialysis at Praya Central Lombok Regional General Hospital. Bioscientist : Journal of Biological Sciences, 13(1), 382. https://doi.org/10.33394/bioscientist.v13i1.14640

Ramada, D. L., Vries, J. De, Vollenbroek, J., Noor, N., Beek, O., Mihăilă, S. M., Wieringa, F., Masereeuw, R., Gerritsen, K., & Stamatialis, D. (2023). Portable , Wearable and Implantable Artificial Kidney Systems : Needs , Opportunities And Challenges. Nature Reviews Nephrology. https://doi.org/10.1038/s41581-023-00726-9

Ratnasari, P. M. D., Yuliawati, A. N., & Dhrik, M. (2022). Analysis of the Relationship Between Knowledge Level and Quality of Life in Chronic Kidney Failure Patients. Pharmacoscript, 5(2), 136–156. https://doi.org/10.36423/pharmacoscript.v5i2.964

Rosyanti, L., Hadi, I., Antari, I., & Ramlah, S. (2023). Factors Causing Psychological Disorders in Patients with Chronic Kidney Disease Undergoing Hemodialysis: A Narrative Literature Review. Health Information : Research Journal, 15(2), e1102. https://doi.org/10.36990/hijp.v15i2.1102

Sari, R. P., & Soleman, S. R. (2024). Quality of Life Profile of Chronic Kidney Failure Patients Undergoing Hemodialysis at Ibu Fatmawati Soekarno Regional General Hospital, Surakarta. Protein : Journal of Nursing and Midwifery Science., 2(4), 123–132. https://doi.org/10.61132/protein.v2i4.683

Schunke, M., Schulte, E., & Schumaker, U. (2020). PROMETHEUS Human Anatomy Atlas (Head, Neck & Neuroanatomy) (M. Voll & K. Wesker (eds.); 5th ed.). EGC.

Sherwood, L. (2022). Human Physiology From Cells to Systems (9th ed.). EGC.

Subagyo, A., & Kristian, I. (2023). Qualitative Research Methodology. In Aksara Global Akademia (Vol. 5, Issue January).

Susilawati, F., & Sudrajat, A. (2022). Comparison of Blood Urea and Creatinine Levels in Chronic Kidney Failure Patients Before and After Hemodialysis. Binawan Student …, 4, 40–44.

Tantisattamo, E., & Kalantar-Zadeh, K. (2021). Editorial: Novel Therapeutic Approaches in Chronic Kidney Disease, Uremia and Kidney Transplantation: Past, Present and Future. Current Opinion in Nephrology and Hypertension, 30(1), 1–4. https://doi.org/10.1097/MNH.0000000000000677

Wahyuni, I., Tri Nili Sulayfiyah, Mery Eka Yaya Fujianti, Rohman, A., & Bergita Dumar. (2024). Long-Term Hemodialysis Relationship with Care Dependency in Chronic Kidney Failure Patients Undergoing Hemodialysis Therapy at Dr. Abdoer Rahem Regional General Hospital. Indonesian Health Science Journal, 4(2), 40–49. https://doi.org/10.52298/ihsj.v4i2.60

Xie, C., Li, L., & Li, Y. (2022). Learned Helplessness in Renal Dialysis Patients: Concept Analysis with an Evolutionary Approach. Patient Preference and Adherence, 16(August), 2301–2312. https://doi.org/10.2147/PPA.S373134

Yanti, S. I., Sarnianto, P., & Ramadaniati, H. U. (2022). The Relationship Between Quality of Life and Economic Difficulties of Chronic Kidney Failure Patients in the Hemodialysis Unit of Dr. Chasbullah Abdulmadjid Regional General Hospital, Bekasi City. Sabdariffarma Journal, 10(2), 12–21.

Ying, M., Shao, X., Qin, H., Yin, P., Lin, Y., Wu, J., Ren, J., & Zheng, Y. (2024). Disease Burden and Epidemiological Trends of Chronic Kidney Disease at the Global, Regional, National Levels from 1990 to 2019. Nephron, 148(2), 113–123. https://doi.org/10.1159/000534071

Zhou, M., Gu, X., Cheng, K., Wang, Y., & Zhang, N. (2023). Exploration of symptom clusters during hemodialysis and symptom network analysis of older maintenance hemodialysis patients : a cross sectional study. BMC Nephrology, 1–14. https://doi.org/10.1186/s12882-023-03176-4